Moustafa
Moustafa suffers from the most severe form of VACTERL association. This complex condition has affected almost all sys…
Cohen
Cohen suffers from Gracile Syndrome an incredibly rare genetic condition. He is the only child in NSW with the condit…
Arista
Arista suffers from Mirage Syndrome. An acronym for the major findings of myelodysplasia, infection, restriction of …
Braith
Braith suffers from Spastic Quadriplegic Cerebral Palsy. Diagnosed at birth, Braith has endured many challenges throu…
Jaxon
Jaxon suffers from Porencephaly, an extremely rare disorder of the central nervous system, in which cyst or cavity fi…
Rani
Rani is a very medically complicated child; she is under the care of numerous teams. Along with her brain injury, Ran…
Harry
Harry was diagnosed with Bone Cancer at the age of 8. At such a young age, he underwent extensive surgery to remove o…
Bentley
Bentley has been diagnosed with Congenital Nephrotic Syndrome, a condition which will one day lead to kidney failure.…
Angelina
Angelina has been diagnosed with Lafora disease, a brain disorder characterized by recurrent seizures and a decline i…
Cayde
Cayde has been diagnosed with Spina Bifida and Bowel Disease. Since Cayde’s Spina Bifida damaged all the nerve ce…
Danny
Danny has been diagnosed Craniosynostosis, Trigonocephaly & Autism. Since his diagnosis at the age of three months, …